Would you all pray for me? Major health issues
Posted: Sat Dec 03, 2011 8:45 pm
There's so much to it so I won't put all the details here but you are welcome to read about it at my blog. http://thomasschooldays.blogspot.com/20 ... away-3.htm
I started the new medicines mentioned in the post and it's a rather big adjustment today as I'm more sensitive to position changes, movement, headache on and off from blood pressure changes, chest pains, etc.
Basic details are that my previously diagnosed heart condition has resurfaced but it's not the same diagnosis and it seems it was perhaps wrong before...I am suspected of having a form of Dysautonomia (a autonomic nervous system disorder) called POTS (postural orthostatic tachycardia syndrome which means bending or standing especially messes me up as my body can't regulate blood flow/pressure and heart rate like it should with postural changes) and they think it's caused by either Elhers Danlos, Thyroid problems, or Lupus. I had a borderline lupus result several years ago. I also have borderline high lung pressure and am being tested for a clot as well. I have bloodwork coming up Monday, tilt table test the 13th, and other tests being scheduled. I'm only 31 and I feel like I'm a tired old lady.
I started the new medicines mentioned in the post and it's a rather big adjustment today as I'm more sensitive to position changes, movement, headache on and off from blood pressure changes, chest pains, etc.
Basic details are that my previously diagnosed heart condition has resurfaced but it's not the same diagnosis and it seems it was perhaps wrong before...I am suspected of having a form of Dysautonomia (a autonomic nervous system disorder) called POTS (postural orthostatic tachycardia syndrome which means bending or standing especially messes me up as my body can't regulate blood flow/pressure and heart rate like it should with postural changes) and they think it's caused by either Elhers Danlos, Thyroid problems, or Lupus. I had a borderline lupus result several years ago. I also have borderline high lung pressure and am being tested for a clot as well. I have bloodwork coming up Monday, tilt table test the 13th, and other tests being scheduled. I'm only 31 and I feel like I'm a tired old lady.